ParkMOVE (05.2024 - present)
Moving towards personalized rehabilitation for Parkinson’s disease informed by diversity, exercise responders and brain activity during motion
Collaborators:
Nadejda Baraznenok, Prof. Dr. Breiffni Leavy, Dr. Andreas Wallin, Prof. Dr. Franziska Albrecht, Prof. Dr. Erika Franzén (and more from her research group and their collaborators)
Role:
Project Coordinator (06.2024 - 05.2026, from 06.2026: external collaborator)
Status:
Ongoing
Project Overview and Goals:
The ParkMOVE project is a large multidisciplinary project led by Prof. Dr. Erika Franzén at the Karolinska Institutet with the ultimate aim to reduce the disease burden and, particularly, the risk of falls as well as increase health-related quality of life by individually tailored training protocols in individuals with Parkinson's disease. To achieve this aim, this project is divided into 4 stages.
Stages 1 to 3 focused on building the groundwork for improving individualized tailoring of training on the basis of the exploration of motor-cognitive performance between young adults, older adults, and individuals with PD (stage 1), classification of PD subtypes (stage 2), and characterization of predictors for (non-)responders to the HiBalance training in PD (stage 3).
My responsibility was to coordinate and later contribute to Stage 4 of the projects which builds on the findings of these three previous stages and aims to iteratively co-design, purpose-develop, test, refine, and evaluate a novel hybrid exergame-based motor-cognitive training concept for the secondary/tertiary prevention of PD. The focus of the projects is to develop a training concept that is personalized based on multimodal data to inform decision making on the type, content, and characteristics of the training and is individually tailored and progressed according to real-time physiological and performance data. The project follows the Co-Develop-IT Guideline.
Nadejda Baraznenok, Prof. Dr. Breiffni Leavy, Dr. Andreas Wallin, Prof. Dr. Franziska Albrecht, Prof. Dr. Erika Franzén (and more from her research group and their collaborators)
Role:
Project Coordinator (06.2024 - 05.2026, from 06.2026: external collaborator)
Status:
Ongoing
Project Overview and Goals:
The ParkMOVE project is a large multidisciplinary project led by Prof. Dr. Erika Franzén at the Karolinska Institutet with the ultimate aim to reduce the disease burden and, particularly, the risk of falls as well as increase health-related quality of life by individually tailored training protocols in individuals with Parkinson's disease. To achieve this aim, this project is divided into 4 stages.
Stages 1 to 3 focused on building the groundwork for improving individualized tailoring of training on the basis of the exploration of motor-cognitive performance between young adults, older adults, and individuals with PD (stage 1), classification of PD subtypes (stage 2), and characterization of predictors for (non-)responders to the HiBalance training in PD (stage 3).
My responsibility was to coordinate and later contribute to Stage 4 of the projects which builds on the findings of these three previous stages and aims to iteratively co-design, purpose-develop, test, refine, and evaluate a novel hybrid exergame-based motor-cognitive training concept for the secondary/tertiary prevention of PD. The focus of the projects is to develop a training concept that is personalized based on multimodal data to inform decision making on the type, content, and characteristics of the training and is individually tailored and progressed according to real-time physiological and performance data. The project follows the Co-Develop-IT Guideline.
Based on our experience and key learnings from previous projects, we are currently working with leading researchers in the field to develop a consensus-based refined methodological guideline for the iterative Co-design, purpose-Development, and evaluation of Individually tailored Technology-enhanced Training concepts (Co-Develop-IT) including a checklist to facilitate the effective implementation and reporting of these guidelines (see project Co-Develop-IT).
Stage 4 of the ParkMOVE project implements these guidelines. We provide a step-by-step application example in the manuscript presenting the Co-Develop-IT guideline which has recently been published here: Co-Develop-IT! Unifying Methodological Guideline for the Co-Design, Development, and Evaluation of Individually Tailored Technology-Enhanced Training and Rehabilitation Concepts: Consensus Development Study and Tutorial.
We are currently working oh Phase 2 of implementing the Co-Develop-IT guideline. The aim of this phase of the project is to elaborate a comprehensive set of design and implementation requirements for our solutions to be developed. To ensure we consider all relevant viewpoints of interest holders together with existing scientific evidence, we are working on a narrative synthesis of the literature together with two qualitative studies – one study with individuals with PD (primary end-users) and one focus group study with the remaining interest holders.
Stage 4 of the ParkMOVE project implements these guidelines. We provide a step-by-step application example in the manuscript presenting the Co-Develop-IT guideline which has recently been published here: Co-Develop-IT! Unifying Methodological Guideline for the Co-Design, Development, and Evaluation of Individually Tailored Technology-Enhanced Training and Rehabilitation Concepts: Consensus Development Study and Tutorial.
We are currently working oh Phase 2 of implementing the Co-Develop-IT guideline. The aim of this phase of the project is to elaborate a comprehensive set of design and implementation requirements for our solutions to be developed. To ensure we consider all relevant viewpoints of interest holders together with existing scientific evidence, we are working on a narrative synthesis of the literature together with two qualitative studies – one study with individuals with PD (primary end-users) and one focus group study with the remaining interest holders.